Fibro

I have fibromyalgia, apparently, and many of it’s comorbidities. Osteoarthritis is a biggie, as is IBS, allergies, odd immune system and utter exhaustion. It’s no surprise that I write about it sometimes. All the “joy” is collected here. OK, I lied. It’s bloody awful.

It will grow

It will grow

Whenever a woman does something drastic to her hair, there’s a reason. Here’s mine. I’ve been feeling much worse than usual over the past few months. Been so dry of mouth and eye, utterly exhausted, even by my standards, and oh, the pain. I hadn’t seen a doc since...

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(Dis)Ableism

(Dis)Ableism

Most of you will know I have fibromyalgia/cfs. I also have osteoarthritis, IBS, loads of allergies, chronic widespread tendonitis, bursitis… I’m in pain somewhere every day. I’m not fishing for sympathy, it’s just the way it is.  I recently underwent a...

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Relax!

Relax!

I cannot relax. I do my best, I try to regularly scan my body for signs of tension and make my muscles relax but, quicker than a midnight cramp, they go back to their default state. My legs are so tense they almost stand proud of the chair and my toes are doubled over...

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Nil Desperandum!

Nil Desperandum!

When I had the unsatisfying appointment with the rheumatologist a couple of weeks ago, he mentioned referring me to the physiotherapist to have a cortisol injection in my hip. On Monday afternoon I got a call from Crosshouse Hospital to offer me an appointment the...

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Colouring Outside The Lines

Colouring Outside The Lines

When I was a wee girl I was given a painting by numbers set for Christmas one year. I loved the tiny pots of oil paint, the way the pigment sat at the bottom while the oil floated to the top, the smell, the colours. I was less keen on the result, the painting looking...

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Backup To The Future

Backup To The Future

There are all sorts of reasons why I haven’t blogged in so long and I don’t have the inclination – or the energy – to go into them all. Way back I had intended Friday blog posts to be fibro related so I thought I’d tell you about yesterday as an example of the effects...

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Anxiety and The Accidental Death Wish

Anxiety and The Accidental Death Wish

When I was around nine years old I read Alice in Wonderland and Alice Through The Looking Glass. In one of these books, I can’t remember which, Humpty Dumpty tells Alice she should pick an age and stick to it. What a great idea, I thought! I’d choose to be twelve as...

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A new start

A new start

How fab does my new site look? I liked my old site but it was a bit…serious. I don’t think people who knew me would be look at it and say, “That’s so Nettie!” I wanted something light and fun and colourful, something that reflected me and what I write about. I...

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The Invisible Illness

The Invisible Illness

Fibromyalgia is a fickle illness. It is not steady with a small set of constant symptoms. Instead, we fibronauts have what we like to refer to as flares: days, weeks or months when every symptom you’ve ever had (and possibly a few new ones) happen all at once and at a...

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Snoozle Slide Sheet Review

Snoozle Slide Sheet Review

One of the major issues for fibronauts is disturbed sleep and never waking refreshed. If you’re anything like me, I wake up every time I change position: already tight, aching muscles seem to scream in complaint when I try to move from one side to the other. And as...

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We need to talk about Collin*

We need to talk about Collin*

I was recently talking to a friend about depression – we have both suffered with it off and on and they are one of the first people I go to when I'm 'having a sad'. Talking to them made me think about my own history. I have always tried to be open about my mental...

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To Bullet Journal or not…

To Bullet Journal or not…

Bullet Journalling seems to be flavour of the month, doesn't it? Everywhere you look nowadays there are people expounding on the benefits of what its inventor calls the "analog system for the digital age." Do we need such a thing? Is using a notebook and pen a better...

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*8 Reasons Why I’m Angry

*8 Reasons Why I’m Angry

It's been a funny few weeks, hasn't it? I don't really know where to start, so I'm going to make a list of ALL the things that have got my dander up recently. Syrian refugees have been crossing the Med in their thousands and only when the shocking picture of a wee lad...

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Dear Fibro…

Dear Fibro…

You know, I’ve had quite enough of fibromyalgia, thank you, and it can fuck right off. But of course, it’s a chronic illness and, as yet, incurable so I guess that’s not going to happen any time soon. Today, the bottom of my neck is very sore - I have a couple of...

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